4.4.1 Access to data

Version 3.1 by Evdokimos Konstantinidis on 2021/10/22 13:11

Description: Referring to service, which enables customers to access or retrieve data from one or more databases consisting of relevant data, based on mutual agreements respecting ethics and GDPR, which can be used for development or testing purposes.

R&D service categories: Market and competitor intelligence services

Key characteristics in living lab context:

  • Usually 2 sources: already existing data, new data collected
  • Data must be anonymized and encrypted
  • Consent from participants may also be needed
  • Type of data: demographics/personal data, health-clinical data (e.g., cognitive, treatment changes, physical performance, care to rehabilitation), measure data, sensors' data (brain activity)
  • For open data, FAIR data principles should be followed
  • Ethical approval and GDPR processes when needed

Pre-tasks:

  • Create a data gathering database, specific parameters of improvement
  • Define the accessibility of the database (public or limited access) and how it is collected (in an integrated way or occasional/ad hoc databases/infrastructures)

It is, usually, needed a request that is passed to the responsible of databases

This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 101007990

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